The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) is an authoritative source of information on cancer incidence and survival in the United States. SEER currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 26 percent of the US population. SEER coverage includes 23 percent of African Americans, 40 percent of Hispanics, 42 percent of American Indians and Alaska Natives, 53 percent of Asians, and 70 percent of Hawaiian/Pacific Islanders. (Details are provided in the table: Number of Persons by Race and Hispanic Ethnicity for SEER Participants.) The SEER Program registries routinely collect data on patient demographics, primary tumor site, tumor morphology and stage at diagnosis, first course of treatment, and follow-up for vital status. The SEER Program is the only comprehensive source of population-based information in the United States that includes stage of cancer at the time of diagnosis and patient survival data.
A huge list of links to health statistics and data sets as well as resources to support data collection.
CMS offers researchers and other health care professionals a broad range of quantitative information on our programs, from estimates of future Medicare and Medicaid spending to enrollment, spending, and claims data, and a broad range of consumer research to help its partners and staff. CMS also conducts demonstration projects to explore alternative policies of health care coverage and delivery. These demonstration projects typically cover a limited timeframe, geographic area, and scope of coverage.
The California Health Interview Survey (CHIS) is an important source of information on health and access to health care services.
CHIS is a telephone survey of adults, adolescents, and children from all parts of the state. The survey is conducted every two years.
CHIS is the largest state health survey and one of the largest health surveys in the United States. CHIS gives health planners, policy makers, county governments, advocacy groups, and communities a detailed picture of the health and health care needs facing California’s diverse population.
Reflecting the diversity of California, healthSNAPSHOTS are easy-to-access profiles for geographic areas on important health issues like health insurance, diabetes, heart disease, asthma, smoking and dental care.
All data come from the California Health Interview Survey (CHIS), the most comprehensive source of health information on Californians.
As the Nation’s principal health statistics agency, we compile statistical information to guide actions and policies to improve the health of our people. We are a unique public resource for health information - a critical element of public health and health policy.
The National Family Health Survey (NFHS) is a large-scale, multi-round survey conducted in a representative sample of households throughout India. Three rounds of the survey have been conducted since the first survey in 1992-93. The survey provides state and national information for India on fertility, infant and child mortality, the practice of family planning, maternal and child health, reproductive health, nutrition, anaemia, utilization and quality of health and family planning services. Each successive round of the NFHS has had two specific goals: a) to provide essential data on health and family welfare needed by the Ministry of Health and Family Welfare and other agencies for policy and programme purposes, and b) to provide information on important emerging health and family welfare issues.
HNPStats is a one-stop data source for health, nutrition and population indicators from various national and international data sources. It provides direct access to more than 100 indicators, with time series for countries and country groups from 1960 to the most recent year, where data are available.
In this single data platform, HNPStats compiles key health, nutrition and population indicators for data access, comparison and analysis. Its dynamic data query system is designed in a user-friendly format and creates ready for use reports. A section of HNPStats contains an atlas database where users can access and download maps.
HNPStats has links to many other websites of international agencies and country statistical offices.
National Hansen’s Disease (Leprosy) Registry collects data from health care providers and agencies. Data are analyzed and reported to the Centers for Disease Control and Prevention.
ICHI is the collection of health indicators used by the international organisations WHO-Europe, OECD and the European Commission. The website allows the direct comparison of indicators and indicator definitions, and gives a full account of the ECHI indicator list proposed in the EU Public health Programme.
World Health Statistics is an annual publication of the most recent health statistics for the 193 Member States of WHO.
This document from the 2007 edition presents 10 highlights of global health statistics for 2006. They relate to child undernutrition; child mortality; tobacco use among the poorest; chronic disease and mental health; tuberculosis control; current estimates of HIV; health expenditure; inequalities in health; future trends in causes of death; and appropriate use of health statistics.
The ECHI (European Community Health Indicators) project was carried out in the framework of the Health Monitoring Programme and the Community Public Health Programme 2003-2008. The result is a list of ‘indicators’ for the public health field arranged according to a conceptual view on health and health determinants.
In general, the following criteria were applied in the selection of the indicators:
Indicators are at the crossroads of policy questions and data sets. Indicators reflect a policy interest as well as a selected set of possibilities in terms of what can be calculated. Therefore they will on one hand be justified from the policy side and on the other hand a short characterisation of the data source it’s added.
HES (Hospital Episode Statistics) is the national statistical data warehouse for England of the care provided by NHS (National Health Service) hospitals and for NHS hospital patients treated elsewhere. HES is the data source for a wide range of healthcare analysis for the NHS, government and many other organisations and individuals.
The National Association of Health Data Organizations (NAHDO) is a national, not-for-profit membership organization dedicated to improving health care through the collection, analysis, dissemination, public availability, and use of health data.
NAHDO provides leadership in health care information management and analysis, promotes the availability of and access to health data, and encourages the use of these data to make informed decisions and guide the development of health policy. NAHDO provides information on current issues and strategies to develop a nationwide, comprehensive, integrated health information system, sponsors educational programs, provides assistance, and serves as a forum to foster collaboration and the exchange of ideas and experiences among collectors and users of health data. By doing so, NAHDO works to increase the state of knowledge.
RAND Health originated in the 1960s, when policymakers were engaged in a vigorous debate about how health care should be financed. To provide a factual basis for the debate, in 1971 the Department of Health, Education, and Welfare (now the Department of Health and Human Services) funded the RAND Health Insurance Experiment, a 15-year, multimillion-dollar effort that to this day remains the largest health policy study in U.S. history. The study’s conclusions encouraged the restructuring of private insurance and helped increase the stature of managed care.
Statehealthfacts.org is a project of the Henry J. Kaiser Family Foundation and is designed to provide free, up-to-date, and easy-to-use health data on all 50 states. Statehealthfacts.org provides data on more than 500 health topics and is linked to both the Kaiser Family Foundation website (www.kff.org) and KaiserNetwork.org (www.kaisernetwork.org).
The Henry J. Kaiser Family Foundation is a non-profit, private operating foundation focusing on the major health care issues facing the nation. The Foundation is an independent voice and source of facts and analysis for policymakers, the media, the health care community, and the general public. The Foundation is not associated with Kaiser Permanente or Kaiser Industries.
The Dartmouth Atlas Project works to accurately describe how medical resources are distributed and used in the United States. The project offers comprehensive information and analysis about national, regional, and local markets, as well as individual hospitals and their affiliated physicians, in order to provide a basis for improving health and health systems. Through this analysis, the project has demonstrated glaring variations in how health care is delivered across the United States. The project is run by Center for the Evaluative Clinical Sciences at Dartmouth Medical School.
The California HealthCare Foundation is an independent philanthropy committed to improving the way health care is delivered and financed in California. By promoting innovations in care and broader access to information, our goal is to ensure that all Californians can get the care they need, when they need it, at a price they can afford.
CHCF commissions research and analysis; publishes and disseminates information; convenes meetings of key health care groups; and funds development of programs and models aimed at improving health care in California.
Lots of PDF reports.
WHO is the directing and coordinating authority for health within the United Nations system. It is responsible for providing leadership on global health matters, shaping the health research agenda, setting norms and standards, articulating evidence-based policy options, providing technical support to countries and monitoring and assessing health trends.